Another Aide Hunt

Wow, I didn’t have a good blog month in October.  But, it’s November.  Let’s see if I can do better this month.

So, I am still hunting for a second aide.  That’s a really tough job.  I either get people that have a job already or our schedules just don’t line up.  So I don’t know what to do.  Now that I don’t have to get ready for finals in December, I can take the time to get the word out and interview people.  It’s not an easy job.  Not at all.  And with the Christmas season coming, it’s going to be hard to go to an event if I don’t have the proper support.


Let’s pray something comes up soon.

Assistive Living Information

I got some information from a reader about assistive living and vocational needs.  It’s funny that they e-mailed me this because I am starting to look into assistive living myself.  It isn’t the easiest process when you’ve got a speech impairment or need transportation to and from meetings with the facilities to set everything up. Also, I just finished college and my vocational needs.   So here are the links.

Renters Rights for People with Disabilities
Managing Your Child’s Transition to Adulthood
Guide to Remodeling a Home for Adults with Special Needs
Special Needs Checklist: How Disability-Friendly is Your City?
Vocational Training for Adults with Special Needs

How I Started Writing

Have I ever told you how I started writing?

I was in first grade and I was entered into the annual Reflections contest.  I wrote about my dreams and aspirations for the future.  The poem was called “The Jump”.  I wrote the poem, and then, I didn’t know how to title a piece of work, so I picked a thing that I wish I could do and stuck it in the title.  I surprisingly won third place for it.

I did Reflections for, I think, two more years.  I couldn’t come up with anymore ideas for that so I stopped.  And then, I was on the school newspaper in high school..  I did that on and off for three years.  And then, my therapist’s husband offered me this weblog opportunity in senior year.  At first, I didn’t want it.  I was going through a time that I didn’t want to be bothered with my peers in school.  I had lost contact with my main circle of friends that graduated a year before me.  So I felt lost and I didn’t want to be bothered with a lot of outside interaction.

I am so happy that I did followed through with my weblog.  I may go through quiet periods, but when I think about issue after issue that I feel needs to be discussed, that is when I enjoy blogging.  I hope that I can leave a legacy with this blog.  I feel that a lot of millennials have lost sight of what it means to leave a legacy.  People nowadays expect everything to be given to them.  I, on the other hand, want to leave a legacy.  Years after I am unable to blog anymore, I hope that my weblog is found.  I hope that people see that I advocated for disability rights and tried to set the record straight.  I will do more blogs on special education as I feel that that is one area of our school system needs improvement.  And I am having a writer’s block with my book.  Blogging, right now, is my focus and my passion.

I hope to do some good with my blog.

How It Feels Not To Be In School

Without getting into it, not being in school feels like a relief.  Sure, I miss my friends and I particularly miss St. Thomas Aquinas College, but my September has been a restful one.  I have been getting out with my aide a lot as well as catching up on reading.  The school system is going down hill and I can’t tell you how aggravated it makes me feel that young people are being brainwashed.

Read a few blogs back about my high school service coordinator grading me when she couldn’t.  That was taking advantage of me, and it’s the same thing in public college, but on a grander scale.  The professors are taking advantage of undeveloped minds and unifying their thinking to embarrass American history and erase something called independent thought.  They are saying that America’s start and the way that we ran it was wrong and it needs to change.

That, to me, is not education.  That is lying and brainwashing.  I went through it and I am happy that it’s over.  Now I can collect myself and get myself ready to start a career with my own thoughts, feelings and ideas.


Would I go through college again?  Not unless I did it online and absolutely needed a career change.  Only if the career change was a dire emergency would I go back to school.  Teachers are supposed to teach without bias and they are not doing that.  I’m sorry if I offended anyone with this post, but I just wanted to say how I feel not being in school.

A Poem For Today

Here is a poem that I wrote as it is the unofficial end of summer and autumn slips in.


Hello, Autumn


It is a time to rest,

Draw up the summer things.

The branch overlooking my roof

Drops acorn. They couldn’t hold on

Any longer. But I can’t rest. The farm

Opens tomorrow.


I walk out to the corn field and put a scarecrow

Near the fence. I clench my burnt orange sweater

Shut as the wind starts to blow furiously. I get the

Corn maze ready for the children to scamper around



A storm is coming. I must check the pumpkin patch

For the farm opens tomorrow. I water them and pick

One to put by the scarecrow.


Dusk is coming and I should go in. A hot summer

Comes to an end. The wind brings a chill that’s

Here to stay. As I sit down with my family to a

Chicken and dumpling dinner, we hold hands and

Say, “Hello, autumn.”

Back to School Tip #3: Use Assistive Technologies

Utilize assistive technology .  This can include software like Bookshare, Kurzweil and Learning Ally.  The three examples that I gave you are text-to-speech software.  I used them and I really liked them.  Two of them show text as they read to you. They are Kurzweil and Bookshare.  However, Learning Ally just reads to the person.  My two favorites were Learning Ally and Bookshare. I liked Learning Ally because of the clear reading voices.  I liked Bookstore because of the text-to-speech aspect.

These types of software can help a child read heavy loads of academic resources.  They can also help college students with disabilities get through that hundred page chapter.  The major tip is: Don’t be afraid to use assistive technologies for homework help.  That is what it is there for.  To use for studying purposes.  If anything, it will help improve grades.  So use them to your advantage.

Back to School #2: Don’t Let Anybody Take Advantage of You

I’m going to direct this one to special education kids.  Don’t let anybody take advantage of you.  Let me tell you a story….

I was in high school and I was getting an overload of homework.  I was a freshman getting ready for two New York State Regents so I needed a homework modifier.  I was spending approximately six hours on Earth Science and Algebra.  I wasn’t getting anything else done in my other classes.  So they brought someone in to modify my homework for me.  The next thing I know, the girl was grading me differently than the teacher was on things that didn’t even apply to me and assigning me more homework than I was getting from my real teachers.

No no no.  Don’t let somebody that isn’t your teacher grade you or assign you homework.  People that are assigned a specific job should do only that job, not overstep their boundaries.  They need to be honest with you about their job description.  And if they’re not being honest, tell them.  Don’t let a dishonest person take advantage of you.

Back to School Tip #1: Stand Up To Bullies

I know that it is a Wednesday, but I wanted to start my back to school tips before it got really late.

Stand up to bullies.  No.  Don’t let your bullies push you around.  They prey upon weaker people and it’s worse than twenty years ago because of social media.  And schools forbid hitting the bully before telling the teacher.  So here is what you should do.

  1. Turn off social media.  Turn off social media for part of the night.  I get it.  You need to share the latest gossip with your friends or plan your Friday night party.  But, kids put things on these sites that don’t belong there.  If things get bad, go to texting.  I’m sure that you will get the same answers.
  2. Know who your friends are.  Find your trustworthy group of friends and stay with them.  If somebody betrays you, cut them off.  You don’t need fake friend drama.
  3. Get help.  If things get really bad, tell a teacher or a guidance counselor.  Part of their job is to stop bullying.

I hope this helps.  Let’s reduce bullying this year.

Wheelchair Accessible Home Modification Tips

August is a quiet month for blogging, but soon I will be posting tips for back to school for kids and parents.

Alright, so today, I have a resource that a reader requested that I share with you .  It is  It discusses ADA standards for appropriate home modifications for those recently hurt or injured.  I hope this helps.

Never Assume

I am very guilty of assuming things.  We all are.  I tell people a lot not to assume things and I still do.  I gather it’s a part of human nature.

I am starting to explore housing options here and there.  One thing that I automatically ruled out without any education of what it was was a group home.  For me, the term group home was a big place with inadequate care of hundreds of people.  Well, I went to visit the one my aide works at and I was completely wrong.

A group home is a regular home with people that have a similar disability live together.  This one was a group of people with Down’s syndrome.  They were a sweet group, I must say..  Now I am wondering if this type of living system would be beneficial for me.  I know that I wouldn’t have as much freedom that I would in an apartment, but with a movement disorder, I may meet people in a similar situation that could help me cope with mine…  Just a thought.  I’m not getting a place yet; just exploring options.