Happy New Year

Happy New Year everybody.  I’m sorry.  December was a hectic month between getting ready for Christmas and, well, let’s say, facility hunting.

Is this college grad working?  Not exactly.  I’m thinking about getting a job, but right now, I want to get a volunteer job in my town.  Setting up an actual paying job in the disability world is different than the average employee.  On top of that, the idea of making as much money as you want gets screwed over if you’re already on social security checks.  I’m putting the job hunt off for that reason.  And I need more work experience before really considering a job.

But, managing Self Direction is a job in that I have to manage comm hab hours every week, making sure the day’s activity is weather appropriate and knowing when your aide can or cannot work.  Where I live, winter can get frigid.  But it’s fun.

I hope you have a Happy New Year.

A Look Into My Personal Life: My Music

I think that I have lost it with Bill Staines radio on Pandora.  I love it!  It is a station with country, folk and New Age music mixed into one station.  It is one of my personal favorite stations on Pandora because it’s calming, relaxing and it plays a lot of variety.  It could play folk, bluegrass, old time and a lot more.  I binge listen to it a lot.

It doesn’t play Christmas music, but I think that it has a lot of themes that can relate to the holidays.  It has a lot of songs centered around the love of nature and it just fits into the holidays because this music reminds people of how important it is to come together and love each other. A lot of the songs are about nature and this station could warm a person’s heart like the holidays do.  And a lot of songs about nature are peaceful.  They forget about the hustle and bustle of the city craze.

I developed the love for soft music in senior year.  I always have shied away from loud and wild music.  Even today, I can’t stand hip-hop or rap or rock-and-roll.  Some rock-and-roll I will listen to, but I have to be in the mood for it.  I don’t even keep up with the Joneses with music.  I just listen to what I like.

What kind of music do you enjoy?

Four Days of Gratefulness: Day 4

Alright everybody.  Happy Thanksgiving.

So I did something yesterday.  I got my first manicure in years.  My aide took me and I wanted to do this as a surprise for my grandmother.  I always have a hard time doing my nails because of my movement disorder and it is really enjoyable.  I have not done a formal manicure in a nail salon in years so I wanted to go get one for Thanksgiving.  With the help of my aide, it was a success.  So today I am grateful for my first manicure =].

Four Days of Gratefulness: Day 3

Today I am thankful for food, shelter and warmth.

 You know, growing up, one thing was always made very clear to me.  Not everybody is always as lucky as you are to have food.  I think of this religiously every day and night; every Thanksgiving and Christmas season.  I think of the food drives going on at the grocery stores.  I think of the food pantries at the churches.  I was always devastated by the Feed the Children commercials on television.  I helped the youth bereau in high school around Christmas time, donating food, clothes and toys to homeless people.  I have a soft spot for hungry people and I hope that more people donate to that cause.

It is the same thing with shelter and warmth.  Not everybody has it.  I was taught this too growing up.  Look at the people devastated by the recent wildlife.  They don’t have shelter or warmth.  They are all in shelters.  It is really a shame that not everybody has food, shelter and warmth and we need to be grateful for what we do have.

Four Days of Gratefulness: Day 2

Today I am grateful for my Accent, love of God and my blog audience.

  • Accent.  Without my Accent, I wouldn’t be able to talk to people.  Simply put.  I wouldn’t be able to text people, facilitate conversations or, like at the Thanksgiving dinner, say what I’m thankful for.  It’s a lot easier to program than the Dynavox.  I don’t have to go into every button to program it.  I can simply type a message, save it to a button and then select the button to modify the color.  I also have notebooks to type long messages in and save them.  It’s that easy.
  • Love of God.  I declare my weblog a safe place to express my love of God without prejudice or bias.  The older I get, the less I try to embrace the modern desire for being rich, finding a husband right away and living luxurious.  Right now, God has assigned me to enjoy Self Direction and two weeks ago, I visited my first supportive living facilities.   No tours were taken, but that should be coming up.  He has allowed me to get information from places in New York State that I desire favorably.  So let’s see where this goes.
  • My blog audience.  I know that I blog sporadically, but I do enjoy it.  I am grateful that my audience has been so patient with me.  I just get caught up with some stuff or I don’t know what to say.  Thank you guys.

Four Days of Gratefulness: Day 1

I decided to do a four days of gratefulness challenge.  I should have done it all month, but I didn’t.  Today I am thankful for family, Self Direction and not being in school this Christmas season.

  • Family.  My family is my rock, my protection and my life.  They are so supportive as I start to set up the next stage of my life, apartment hunting.  I am scared that I am apartment hunting as I don’t want it to fall through.  I am a little hesitant, but I know that it has to be done.  But, then, I’m excited.  So they have been really supportive of this.
  • Self Direction.  I am not really working, but I am happy that I have Self Direction and this is something that I have been waiting for 4 years to set up.  I have the best aide, very caring and kind.  We have gone to Sleepy Hollow, Albany and all over.  We even visited Washington Irving’s house.
  • Not being in school this Christmas season.  I am thankful that I don’t have to do homework and get ready for Thanksgiving and Christmas.  That was a lot and I wouldn’t want to balance homework and Thanksgiving or Christmas prep again.

Veterans’ Day: Thank a Vet

Tomorrow is Veterans’ Day; a day to thank all the veterans that have served our country in war.  It honors the men and women that keep us safe.  This is a month of gratitude and it is appropriate that we honor our veterans.  My grandfather, great-grandfather and two of my uncles were veterans and it would really be a shame if they weren’t thanked.

You know, I miss my grandfather.  I honor his service to the firehouse, ambulance corps and the military.  He was in the army.  My great-grandfather and my uncles were in the navy.  I feel that it would be a crying shame if they weren’t honored tomorrow.  World War II ended November 11 at 11 a.m..  That was my great-grandfather’s war and he served in D-Day, Battle of the Bulge and Normady.  I have other family members that are veterans and it would be a crying shame if they were not honored.  My grandfather’s cousin is a veteran.  He should be thanked.

All of the veterans should be thanked.  I ask you to please kindly do so.


Thank you

Another Aide Hunt

Wow, I didn’t have a good blog month in October.  But, it’s November.  Let’s see if I can do better this month.

So, I am still hunting for a second aide.  That’s a really tough job.  I either get people that have a job already or our schedules just don’t line up.  So I don’t know what to do.  Now that I don’t have to get ready for finals in December, I can take the time to get the word out and interview people.  It’s not an easy job.  Not at all.  And with the Christmas season coming, it’s going to be hard to go to an event if I don’t have the proper support.


Let’s pray something comes up soon.

Assistive Living Information

I got some information from a reader about assistive living and vocational needs.  It’s funny that they e-mailed me this because I am starting to look into assistive living myself.  It isn’t the easiest process when you’ve got a speech impairment or need transportation to and from meetings with the facilities to set everything up. Also, I just finished college and my vocational needs.   So here are the links.

Renters Rights for People with Disabilities
Managing Your Child’s Transition to Adulthood
Guide to Remodeling a Home for Adults with Special Needs
Special Needs Checklist: How Disability-Friendly is Your City?
Vocational Training for Adults with Special Needs