Archive | March 2018

Services: Self Direction

I’m sorry that I haven’t blogged.  Crazy busy with midterms.  But I was looking at the other treatments for cerebral palsy and I didn’t see too many other treatment options  that I didn’t go over.  So I thought that I would promote Self Direction as I am very excited to start.  Self Direction gives you the power to get the help you need.  Say that you needed an aide or another service that you’re having trouble getting.  You can get that with Self Direction.  You get a broker to write your plan and a fiscal intermediary to fund your services.  It is a truly amazing service.  It’s starting to flourish for me and I love it.

Here’s the website for more information on Self Direction: https://opwdd.ny.gov/selfdirection.  I’m pretty sure that other states have similar services as well.

Treatment Options: Surgeries

Ok. Let’s see. Today’s topic of treatment is surgery. The surgeries for cerebral palsy of designed to reduce muscle spasms and joint tension.

Here is the website of all of the possible surgeries for cerebral palsy: https://www.webmd.com/children/tc/cerebral-palsy-surgery .

Surgery scares me. This would be my last resort and I would only do it only in an emergency. Although with robotic surgery coming out, the risks are arguably less. And let’s say that a surgery was developed to cure one type of cerebral palsy, something else could go wrong and further damage a body part. That would really upset a child or anybody for that fact. I would only do surgery as a last resort.

But if somebody is not functioning properly and all else fails, then go ahead with the pre-op and follow through with the surgery.

I am all for stem cell research and I would like to see if that does anything for the disability community. I think that will be another possibility of a surgery in the near future.

More options may be available in the future.

Treatment Options: Medications

Hey guys. I have been really busy with school, but I wanted to keep the cerebral palsy treatment theme going this month.

Today’s theme is cerebral palsy medications. There isn’t a cure for cerebral palsy at this time, but the symptoms can be treated.

So, here is a website for the different types of medications for cerebral palsy: https://www.webmd.com/children/tc/cerebral-palsy-medications. I can honestly say that some work better than others for different types. Trust me, I’ve tried some.

I think that for some people with spasticity that certain medications are iffy.  Some medicines are better for people in certain situations than others. I’m not a doctor. I’m just talking from experience.

I hope that this helps you.

Hyperbaric Oxygen Therapy

OK guys. Since March is Cerebral Palsy Awareness Month, I want to explore a lot of treatment options with you.

Today’s topic is Hyperbaric Oxygen Therapy. When I first heard about it, I thought that it was a chamber that you were put in and they lowered you into a pool and that decompressed your brain and lungs.

Well, I did some research and that’s not how it works. It’s not that scary. The chamber is like a MRI machine and once you’re in it, the machine puts three times your oxygen level into your body. This will stimulate and release stem cells and growth hormones as well as temporarily restore the body’s appropriate level of blood gases and tissue function.

Yes I don’t know a lot about medicine and I struggled with research classes in college, but I wish I had the skills to develop a cure for ALL disabilities. I have some ideas from the little biology that I know. What about a basal ganglia operation to fix the brain damage or a medication with a microchip to train the body to function better? These might be medically impossible ideas, but what if they were to be scientifically proven to work? Where would that put us in the line of medicine and treatment?

 

What do you think?